- Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
Cristina's Castle in the Clouds - - Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
DebRA Australia, Queensland Branch - - Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
DebRA Canada - - Includes articles, news, and information about this genetic disorder.
DebRA of America - - Offers information, news, newsletters, support, and resources.
DebRA UK - - Features organization background, information about the disorder, fundraising and research details, and news.
EB Info World - - Information, mailing list, pictures, and help for new parents.
EB Medical Research Foundation - - A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
Epidermolysis Bullosa - Through the Eyes of a Patient - - A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
International EB Forum - - Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
Jonathan's EBzone - - The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder.
Yahoo! Groups: EBworld - - Mailing list support group for parents, patients, and those interested in learning about disease.
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